Welcome to the https://www.chromo17q12.org/ website (the “Website”), operated by the 17q12 Foundation (“Organization”, or “we” or “us”). We are a 501(c)(3) nonprofit that represents individuals and families with either chromosome 17q12 microdeletion syndrome or microduplication syndrome. Our goal is to provide support, begin a registry to gain an accurate number of individuals affected, fund much-needed research, and to create awareness and understanding.
Use of Publications, Trademarks, and Logos
We provide information and resources on chromosome 17q12 microdeletion syndrome and microduplication syndrome, including articles, photographs, patient stories and medical research, newsletters, e-newsletters (collectively, “Publications”). Unless otherwise expressly stated, all content provided on the Website is intellectual property that belongs to us.
You are permitted to download information from the Website for your own personal informational use. You may also copy, distribute, adapt, and transmit content from this Website solely for not for-profit or educational purposes, provided that the use contains the following attribution: [“Reproduced with permission of 17q12 Foundation”. ] You may not suggest any other relationship, endorsement or affiliation with us unless you obtain express written permission.
For any other use, you must obtain express written permission from us.
You may not use or duplicate any Organization logos or trademarks without express written permission from us. To request permission for use of copyrighted material, trademarks, or logos, send an email to firstname.lastname@example.org.
Links to Other Websites
Links on the Website that lead to outside services and resources are provided for convenience only. We do not control the accuracy or availability of those outside services and resources. [Organization does not endorse those organizations or the information provided by other organizations.] Any concerns regarding any such service or resource, or any link, should be directed to the particular service or resource.
Third Party Content
We respect copyright and trademark laws. Third-party material may appear on our site, and those creators retain all rights to their works, except where noted.
Though we strive to keep the information available on the Website current and accurate, errors can [and do] occur. We provide the information on the Website with no representations or guarantees of accuracy, completeness, or timeliness. The 17q12 Foundation will not be liable to you or any other person for any damages that result from the use or inability to use the Website, or as a result of any content, information, services, or resources made available through the Website.
About These Terms – General Provisions
Effective Date: October 11, 2021